Updated: July 30, 2024
Effective Date: August 16, 2018
The International Psoriasis Council (“IPC”, “we”, or “us”) cares about your privacy and the security of your Personal Data. This Privacy Statement describes how we collect and otherwise process your Personal Data (as defined below) in connection with:
• Your use of and contact through the IPC website (psoriasiscouncil.org, the “Site”)
• Your attendance at IPC events, seminars, and other meetings
• IPC’s application processes
• Other scenarios where we interact with you and present or link to this Privacy Statement.
The International Psoriasis Council is the data controller of the Personal Data we collect under this Privacy Statement.
“Personal Data” refers to any information that uniquely identifies, relates to, describes, or is reasonably capable of being associated or linked to you. We process the following categories of Personal Data:
We collect your Personal Data from:
• Direct interactions, such as when you become a sponsor, apply for employment or other positions with IPC, make a donation, sign up for a newsletter, register for an event, submit medical images on our Site, participate in surveys or questionnaires, or in any way engage with our personnel
• Cookies and automated technologies, such as when you interact with our Site or click on links in our emails
• Third parties, when the circumstances arise, such as when you apply for employment and we contact your references and former employers
• Social media, such as if you link to social media platforms or use social media plug-ins, we may (depending on your user privacy settings on that social media platform) automatically receive information about you from that social media platform.
In addition to Personal Data, we may collect other information about how you use the Site that alone cannot be generally used to identify you. For example, we may collect your browser type, device type, and operating system information. If any of this information can be used to identify you because, for example, we link it to your Personal Data, we will treat such information as Personal Data.
Below is a description of the Personal Data we collect, the likely source of the Personal Data, how we may use it, for what purposes, and pursuant to what legal basis.
Other Uses: In the event of any other purposes for which we wish to use your Personal Data that are not listed above, or any other changes we propose to make to the existing purposes, we will notify you by amending this Privacy Statement in accordance with the Section titled “Changes to this Privacy Statement” below.
We will disclose your Personal Data within IPC, at your direction, as disclosed to you at the time of collection, or in the following circumstances:
• Service Providers: We may provide your Personal Data to our services providers that help us run and manage our organization and process Personal Data solely on our behalf. The categories of service providers include: technology service providers, analytics services providers, marketing service providers, and credit card processors.
• Corporate Transaction: In the event IPC is involved in a merger, reorganization, acquisition or sale of all or a portion of its assets, or other corporate transaction, we may disclose your Personal Information as part of that transaction.
• As Required By Law: We may disclose your Personal Data if we determine that the disclosure is necessary: (i) to comply with any law applicable to us, a request from law enforcement, a regulatory agency, or other legal process; (ii) to protect the legitimate rights, privacy, property, interests or safety of IPC, our business partners, personnel, or the general public; (iv) to pursue available remedies or limit damages; (v) to enforce our Terms of Use; or (vi) to respond to an emergency.
IPC is committed to complying with the data protection laws, including those outside of the United States, that apply to our collection and use of your Personal Data. IPC is located in the United States, and we recognize that the laws in the United States may be different and, in some cases, not as protective as the law’s other countries, including the European Economic Area.
By providing us with your Personal Data, you acknowledge that we will collect and process your Personal Data will be transferred and processed in the United States. If we transfer Personal Data internationally, we take steps to provide adequate safeguards through the use of standard contractual clauses or other lawful and approved methods. If you would like to know more about how we protect your Personal Data, you can contact us using the information in the section “Contact Us” at the end of this Privacy Statement.
Cookies and Other Data Collection Technology: We use Cookies, Web Beacons (also known as pixel tags and clear GIFs) and other similar technology (together, “Data Collection Technology” on our Site. A “Cookie” is a small text file that is sent to or accessed from your web browser or your computer’s hard drive. A Cookie typically contains the name of the domain (internet location) from which the Cookie originated, the “lifetime” of the Cookie (when it expires), and a randomly generated unique number or other similar identifier. A Cookie may also contain information about your computer, such as user settings, browsing history and activities conducted while using our online services. A “Web Beacon” (also called a “pixel tag” or “clear GIF”) is a type of computer code that enables us to monitor user activity and Site traffic. To learn more about cookies and web beacons, visit www.allaboutcookies.org.
Data Collection Technology helps us improve your experience on our online services. For example, we use Google Analytics, a web-based analytics tool that tracks and reports on the manner in which the Site is used to help us to improve it. Google Analytics does this by placing Cookies on your device. The information that the Cookies collect, such as the number of visitors to the Site, the pages visited and the length of time spent on the Site, is aggregated.
We also may use Data Collection Technology to collect information from the computer or device that you use to access our online services, such as your operating system type, browser type, domain and other system settings, as well as the language your system uses and the country and time zone in which your computer or device is located.
Your Control of Cookies: Some web browsers (including some mobile web browsers) provide settings that allow you to control or reject Cookies or alert you when a Cookie is placed on your device. You may also be able to reject mobile device identifiers by activating the appropriate setting on your mobile device. Although you are not required to accept Cookies or mobile device identifiers, if you block or reject them, you may not have access to all features available through our online services.
Our Policy on Do Not Track Signals: Some web browsers incorporate a “Do Not Track” (“DNT”) or similar feature that signals to websites that a user does not want to have his or her online activity and behavior tracked. If a website that responds to a particular DNT signal receives the DNT signal, the browser can block that website from collecting certain information about the browser’s user. We follow the DNT signals we receive from your browsers.
When interacting with us, you may come across links or references to third party websites and services that we do not operate or control. If you provide your Personal Data to that third party through its websites or services, you will be subject to that third party’s privacy practices and policies. This Privacy Statement does not apply to any Personal Data that you provide to a third party website or service. We recommend that you read the privacy policy that applies to that third party website or service. A link or reference to a third party website or service does not mean that we endorse that third party or the quality or accuracy of the information presented on its website or service.
We implement appropriate technical and organizational measures designed to ensure your Personal Data in protected from unauthorized access, use, disclosure, alteration or destruction, in accordance with applicable laws and regulations. For example, we limit our collection and use of your Personal Data to the extent necessary to provide you with our services. If you would like to know more about how we protect your Personal Data, you can contact us using the information in the section “Contact Us” at the end of this Privacy Statement. Please note, however, that the electronic transmission of information is not completely secure and therefore we cannot guarantee that the security measures we have in place to safeguard personal information will never be defeated or fail, or that such measures will always be sufficient or effective.
We will keep your Personal Data for as long as necessary to fulfill the purposes for which we collected it, including any legal, accounting or reporting requirements. To determine the appropriate retention period, we consider the amount, nature, and sensitivity of Personal Data, the potential risk of harm from unauthorized use or disclosure of your Personal Data, the purposes for which we process your Personal Data, whether we can achieve those purposes through other means, and all applicable legal requirements.
Our services are not directed to or intended for use by minors. If we learn that we have received Personal Data directly from a child under age 16 without his or her parent or legal guardian’s verified consent, we will use that Personal Data only to respond directly to that child (or his or her parent or legal guardian) to inform the child that he or she cannot use our services. Subsequently, we will delete such Personal Data.
If you do not wish to receive marketing-related emails from us, please click the unsubscribe link at the bottom of any marketing email or email us using the information in the section “Contact Us.” Please note that even if we stop all marketing communications, you may still receive administrative, legal, and other important communications from us.
You may access and modify the Personal Data we maintain about you by contacting us using the contact information below. We will respond to your inquiry within a reasonable timeframe.
, including but not limited to, the European Economic Area and United Kingdom, you may have the following additional rights with respect to your Personal Data:
If you wish to exercise any of your rights above or advise us of any changes to your Personal Data, please contact us using the information in the “Contact Us” section at the end of this Privacy Statement. We must verify your identity before fulfilling your requests, and if we cannot verify your identity, we may request additional information from you. If you are an authorized agent making a request on behalf of another person, we will also need to verify your identity, which may require proof of your written authorization or evidence of a power of attorney. We endeavor to respond to requests within the time period required by applicable law. If we require more time, we will inform you of the reason and extension period in writing. We may charge you a reasonable fee if you request additional copies of your Personal Data or make other requests that are manifestly unfounded or excessive.
Please note that if you decide to exercise some of your rights, we may be unable to provide you certain services, or you may not be able to use or take full advantage of the services we offer.
In the event we secure your consent to do so, you have the right to opt out at any time by contacting us at info@Psoriasiscouncil.org.
California Civil Code Section 1798.83 permits individual California residents to request certain information regarding our disclosure of certain categories of Personal Data to third parties for those third parties’ direct marketing purposes. To make such a request, please contact us using the information in the “Contact Us” section below. This request may be made no more than once per calendar year, and we reserve our right not to respond to requests submitted other than to the email or mailing addresses specified below. Note that we do not currently share Personal Data with third parties for those third parties’ direct marketing purposes.
The Effective Date of this Privacy Statement is set forth at the top of this page. If we materially change the way we collect, use or disclose your Personal Data we will notify you in advance by email and/or by placing a prominent notice on our Site.
We welcome your questions and comments about this Privacy Statement or how we process your Personal Data. Please use the information below to contact us, and we will respond as soon as reasonably possible.
International Psoriasis Council
2840 W Bay Dr #380
Belleair Bluffs, FL 33770
Phone: 972-861-0503
Email: info@Psoriasiscouncil.org
European Representative:
Peter van de Kerkhof
EUrepresentative@Psoriasiscouncil.org
IPC Jr. Councilor Towhida Noor reviews the psoriasis pipeline: selective TYK2 inhibitors, long-acting IL-17 and IL-23 biologics, and IL-36 blockade in GPP.
IPC Board Member and Treasurer Joel Gelfand, MD, MSCE, is the editor of a new textbook, Psoriasis: An Expert Global Perspective, now available for preorder from Elsevier. He worked with associate editors IPC President Bruce Strober, MD, PhD; IPC Vice President/President-Elect Claudia de la Cruz, MD; and IPC Chief Medical Officer Peter van de Kerkhof, MD, PhD. Nearly 50 authors from 20 countries contributed 30 chapters covering psoriasis from its earliest descriptions through genetics, immunology, and current therapies, with clinical images of psoriasis across diverse skin tones. All royalties support IPC.
PRE-ORDER YOUR COPY
In this video, IPC Councilor Rodrigo Garcia Salinas, MD, a rheumatologist from Argentina, explains how to recognize psoriatic arthritis early, including why joint pain, how long a patient has had psoriasis, and family history can matter more than skin severity alone. He also reviews how imaging helps catch early disease and how to choose treatment based on each patient’s joint, spine, and skin involvement.
IPC President Bruce Strober reviews the link between psoriasis and metabolic disease, drawing on findings from IPC’s recent paper in the Journal of the American Academy of Dermatology (JAAD). He translates this growing body of evidence into five concrete priorities from the 2025 IPC Think Tank for improving cardiometabolic screening and care.
